Changing Perspectives

We are glad to find out that Amelia qualifies for "Babies Cant' Wait" program. This means we will have some help with coordinating her services such as speech therapy and we will get these services at a discounted rate. Ga Pines is meeting with us once a week right now. They are a resource/education/support program. We like our Parent advisor Pamela:) Today we went for the second opinion Dr. visit. We saw Dr. Todd at Emory. He felt like we were doing the right things. He wants us to get genetic blood testing which we are doing Thursday at Children's. (Most Deafness is a autosomal recessive disorder-for all our biology friends :) )The "red flag" today was his analysis of Amelia's ABR Test. She has a reverse slope which means her hearing is worse in the lower frequency range which is rare. We are going to do another ABR to confirm this, but if this remains the case then she may be at higher risk of losing all hearing. This would mean cochlear implants.
On a personal reflection note, it is weird how your perspective can change. One day your worst fear or worry becomes the next days best case scenario. We use to think hearing loss was the worst case scenario and now we hope that she just does not lose it all. We also worry and hope that she does not have any genetic disorders or vision problems. We can hope for scientific advancements, but in the mean time we will just live one day at a time. “Life is not measured by the number of breaths we take, but by the moments that take our breath away”-Thinkexist.com
Although our perspectives keep changing, we will remember that Amelia always brings us joy-Scarlett
-Scarlett